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Together against helplessness

ALS is a disease that during full consciousness deprives human possibilities to control own body. It can starts from your hands, you stop talking, you sit on the wheel chair. The end is coming. There is no cure. Join our fight against helplessness.

Author: Alsa, z.s.

EUR 43,977
pledged of EUR 39,526

111%

111% completed

2,136 contributors pledged

Technology, Education

Praha, Hlavní město Praha, Česká republika

All or nothing. Project finished on Jun 4, 2016 at 12:34.

Show all rewards

ALS is HELPLESSNESS

There is about 800 people and the incidence is about 200 new patients with amyotrofic lateral sclerosis per year in Czech Republic. And the same number dies every year. It is a disease in which a person within two to five years gradually loses the ability to control muscles. The disease does not choose a weak individual with ill health, often reaches the people at the peak of their powers and creative potential – of the most famous cases we can mention the interpreter Dan Gauls, football player Marian Čišovsky or politician Stanislav Gross.

ALSA, z.s. is the only non profit in Czech Republic helping patients with ALS to fight their disease. There are no ALS interdisciplinary teams, no guidelines. ALS patients are in urgent needs of basic handicap aids and special aids maintaining their daily routine as communication and breathing. Thank you that you care!

The disease progresses rapidly and if the patient asks standardly the insurence company for the utility it happens that he is granted with it only when he does not need it anymore.

WHAT TO DO ABOUT IT?

ALS patients need regular special physiotherapy, cough aids, electrically operated trucks, special assitant to help with eating, hygiene, dressing up etc. And the most expensive are means of communication, that helps them to comunicate after they loose their ability to speak. And they need it quickly, not after a very long approval process. Mental abilities of patients remain unchanged and so they are sharply aware of their helplessness.

Pomozte nám s naší figurkou dojít co nejdále na pomyslné cestě k vytouženému cíli.

We want to build a platform on which ALS patients will receive quick and appropriate comprehensive care. We want to buy devices that are able to be quickly lend to needy because the insurance company does not cooperate as quickly as we need. We are team of professionals – psychician, psychiatrist, physiotherapist, speech therapist – already visiting some of the patients at home, but we want to extend for all who need our help. We want to train doctors and other professionals everywhere around the country, so they could effectively help ALS patients. To ease their relatives we want to provide full care stays approximately for three days or more.

We want to build a socio-medical center that will assemle all of our profesionalls and activities., which will create a place for short stays, but also the center for cases where relatives can no longer take care of their loved ones.

WHAT WILL WE DO WITH YOUR MILLION?

When we receive a million we purchase the most needed equipment to our rental – eye movements sencors, suction unit, tablets for communication, motomed,cough assist instrument, splint for streching of spastic limbs and convalescent stays. Of course a million is the minimum that we need to start with some of these activities, with more money we could do even more.

WHO ARE WE?

We are a nonprofit organization ALSa, z.s. – a group of volunteers from the ranks of doctors, physiotherapists, speech therapist, social workers and others. Our main place of work is Neurological Clinic of the 1st Medical Faculty of Charles University in Prague. We want to ensure quality patient care comparable with other countries, we want them not to die in undignified conditions and pain when it is possible to offer a more tolerable alternative. We know we can help.

WHY DO WE APPEAL TO YOU?

This disease origin is not known, there is no prevention or treatment. It frequently occurs in middle age active people. It can happen to anyone, even your beloved. We appeal to you because you can help us get the resources we need so we can start to help quickly and efficiently. Hundreds of people need our help today.

WHAT WILL YOU GET FOR YOUR MONEY?

In addition to the warm feeling in the heart land scape and many thanks from us and our patients, you can buy intersting experiences with personalities that support us or their photo taken by Štěpán Hon, you can also choose from his free creation or purchase a photo session in a rural studio for your entire family. But also you can buy shirts, badges, bracelets from youtubers, who joined our campaign. Choose what you like, there is a enough cool stuff, come in, spend your money and support us. We need you. Thank you.

WE ARE NOT HELPLESS!

Join Daniela Pestova, David Kraus, Jenovefa Bokova, David Prachar, Daniela Pisarovicova, Patricie Solarikova, Pavel Horvath, Jana Plodkova, Stanislav Majer, Jaroslav Spacek, Daniela Kolarova … Please, help us fight helplessness!

Comments

Choose reward for your contribution

  • sold 641
    Become a gracious brick (donor)

    Send the amounth or more and shift us a bit closer to our goal. If you agree, your name will become an eternal part of the ALSA centre and will be carved on the wall of donors. Before we will build the centre we will proudly place it on our web pages.

    Reward delivery: not specified

    EUR 3.95
    (CZK 100)

  • sold 507
    Special youtuber bracelet

    Get your rarest youtuber bracelet. Just for this campaign a limited edition was created with the names of six YouTubers who participate in the campaign - Ati, Stejk, Martin Rota, Petr and Patrik from the channel FreakOut, Vláďa Videos, Nejfake. The bracelet wears slogan "Together Against helplessness". Please add 5 euro for the shipping fee if shipping out of the Czech Republic.
     

    Reward delivery: on address, in a quarter after the Hithit project end

    EUR 7.91
    (CZK 200)

  • sold 150
    ALSA badge

    Choose your favourite ALSA badge (see numbered variants at the end of project description). Please add 5 euro for the shipping fee if shipping out of the Czech Republic.

    Reward delivery: on address, in a quarter after the Hithit project end

    EUR 7.91
    (CZK 200)

  • sold 343
    Stylish ALSA bag with personal acknowledgement

    Choose your favourite cloth ALSA bag (the same motives as on badges – see at the end of project description - please note the number of motive) and receive personal acknowledgement with surprise. Please add 5 euro for the shipping fee if shipping out of the Czech Republic.

    Reward delivery: on address, in a quarter after the Hithit project end

    EUR 11.86
    (CZK 300)

  • sold 295
    Design ALSA T-shirt

    Design black or grey T-shirt with embroidered ALSA logo, designed especially for this campaign by fashion designer Lenka Valevská. You will stand out of the crowd. Please note if you want men or women variant. Please add 5 euro for the shipping fee if shipping out of the Czech Republic.

    Reward delivery: on address, in a quarter after the Hithit project end

    EUR 19.76
    (CZK 500)

  • sold 33
    Personal video acknowledgement

    Would you like Daniela Peštová, Stanislav Majer or David Kraus to thank you or your close person personally? No problem! Just choose and we will make the personal acknowledgement and send it to your email. Please note the name of the one who we should thank. Thanks.

    Reward delivery: in a quarter after the Hithit project end

    EUR 19.76
    (CZK 500)

  • sold 40
    ALSA 2017 calendar

    12 documentary portraits of celebrities who participate in and support our initiative. So also you participate and support our initiative and enjoy impressive photos of our calendar. Please add 5 euro for the shipping fee if shipping out of the Czech Republic.

    Reward delivery: on address, in half a year after the Hithit project end

    EUR 23.72
    (CZK 600)

  • remaining 134 from 200
    ALSA 2017 calendar – Limited Edition

    Do you like specials and would you like to support us more? Choose 12 documentary portraits of the celebrities supporting ALSA taken in their privacy by photographer Štěpán Hon, where every photo is personally signed. Please add 5 euro for the shipping fee if shipping out of the Czech Republic.

    Reward delivery: on address, in half a year after the Hithit project end

    EUR 59.29
    (CZK 1,500)

  • sold 17
    Support us generously

    We will send you T-shirt, bag, calendar and personal video acknowledgement from Daniela Peštová, David Kraus and Stanislav Majer. Please note the name of the person.

    Reward delivery: on address, in half a year after the Hithit project end

    EUR 118.58
    (CZK 3,000)

  • sold 3
    Photos of our celebrities

    For ALSA campaign signed photographs by Štěpán Hon on gallery paper 40x60 cm with personal dedication of who is on the photograph are available. Choose between Linda Bartošová, Jenovéf Boková, Daniela Písařovicová, Jana Plodková, Patricie Solaříková, David Kraus, Stanislav Majer or David Prachař. Note who you choose.

    Reward delivery: on address, in a quarter after the Hithit project end

    EUR 138.34
    (CZK 3,500)

  • remaining 2 from 10
    Series „Ulice“ - Patricie Solaříková

    Be part of making of „Ulice“ for two. Take your partner to the ateliers where „Ulice“ is filmed. Patricie Solaříková will introduce you the actors, surroundings and backstage filming.

    Reward delivery: in half a year after the Hithit project end

    EUR 158.10
    (CZK 4,000)

  • remaining 2 from 2
    To the theatre with Jana Plodková

    Tickets for you and your partner for the theatre show with Jana Plodková in the main role.

    Reward delivery: in half a year after the Hithit project end

    EUR 197.63
    (CZK 5,000)

  • remaining 2 from 5
    Into newsroom with Daniela Písařovicová

    Would you like to be part of main broadcasting of ČT1 „Události“ as an insider?

    Reward delivery: in half a year after the Hithit project end

    EUR 197.63
    (CZK 5,000)

  • remaining 2 from 5
    Into Viola with David Prachař

    Tickets for two into Viola to see the show with David Prachař and Emil Viklický with personal acknowledgement.

    Reward delivery: in half a year after the Hithit project end

    EUR 197.63
    (CZK 5,000)

  • remaining 2 from 3
    To the theatre with Stanislavem Majerem

    Tickets for you and your partner for the theatre show with Stanislavem Majerem in the main role.

    Reward delivery: in half a year after the Hithit project end

    EUR 197.63
    (CZK 5,000)

  • remaining 3 from 5
    To ČT24 with Linda Bartošová

    ČT24 newsroom excursion - Linda Bartošová will show you how the broadcasting of our only news station goes.

    Reward delivery: in half a year after the Hithit project end

    EUR 197.63
    (CZK 5,000)

  • sold 5
    Buy us a palette of gracious bricks

    Move us way further on our way to desired goal. For 5 000 CZK your name will be carved on the wall of donors of a future ALSA centre and the great feeling of this will be priceless.

    Reward delivery: not specified

    EUR 197.63
    (CZK 5,000)

  • sold 2
    Become a pillar made of gracious bricks

    For 10 000 CZK you can build a great part of wall and though we are not building the walls now the money will be used to buy aid tools and recondition stays. Once when the wall is built your name will be carved on it and you will also receive calendar, badge and hearty acknowledgement.

    Reward delivery: not specified

    EUR 395.26
    (CZK 10,000)

  • remaining 2 from 2
    Have a diner with Linda Bartošová

    Dinner with Miss World finalist Linda Bartošová.

    Reward delivery: in half a year after the Hithit project end

    EUR 592.89
    (CZK 15,000)

  • remaining 2 from 2
    Become one of the celebrities

    Remuneration for your contribution a photograph Štěpán Hon will meet you and make a set of photographs out of which one will become a part of ALSA show.

    Reward delivery: in half a year after the Hithit project end

    EUR 592.89
    (CZK 15,000)

  • sold 0
    Become a bearing wall made of gracious bricks

    Become a bearing wall made of gracious bricks of your goodness. 15 000 CZK will move us a great deal forward on our way to desired goal and your name will be carved on the wall of donors and you will receive a limited edition calendar, badge, T-shirt and hearty acknowledgements.

    Reward delivery: not specified

    EUR 592.89
    (CZK 15,000)

  • sold 0
    Set of photographs of our celebrities

    Set of photographs of our celebrities - numbered and signed authors prints on gallery paper 40x60 cm with dedicationsp

     

    Reward delivery: in a quarter after the Hithit project end

    EUR 790.51
    (CZK 20,000)

  • remaining 2 from 2
    On caravan with Stanislav Majer

    Enjoy an evening, night and day at the caravan of actor Stanislav Majer.

    Reward delivery: not specified

    EUR 790.51
    (CZK 20,000)

  • remaining 1 from 4
    Maecenas of ALSA "L"

    • Become a Maecenas, whose name will be signed on the wall of future Alsa centre among other donors on a special place.
    • You will be automatically invited to every ALSA Charity events and ALSA will thank you at the working diner with one of our celebrities.
    • As a bonus you will receive a signed photograph by Štěpán Hon on gallery paper 40x60 cm with personal dedication of who is on the photograph.
    • Badge, T-shirt and calendar 2017 included

    Reward delivery: in half a year after the Hithit project end

    EUR 1,185.77
    (CZK 30,000)

  • remaining 2 from 3
    Maecenas of ALSA "XL"

    • Become a Maecenas, whose name will be signed on the wall of future Alsa centre among other donors on a more special place.
    • You will be automatically invited to every ALSA Charity events and ALSA will thank you at the working diner with one of our celebrities.
    • As a bonus you will receive a signed photograph by Štěpán Hon on gallery paper 60x90 cm with personal dedication of who is on the photograph.
    • Set of all badges, T-shirt and calendar 2017 limited edition included

    Reward delivery: not specified

    EUR 1,976.28
    (CZK 50,000)

  • remaining 2 from 2
    Maecenas of ALSA "XXL"

    • Become a Maecenas, whose name will be signed on the wall of future Alsa centre among other donors on a more special place.
    • You will be automatically invited to every ALSA Charity events and ALSA will thank you at the working diner with one of our celebrities.
    • As a bonus you will receive a signed photograph by Štěpán Hon on gallery paper 60x90 cm with personal dedication of who is on the photograph.
    • Set of all badges, T-shirt and calendar 2017 limited edition included.
    • Photo shooting of you and your family in rural atelier with Štěpán Hon.

       

    Reward delivery: in half a year after the Hithit project end

    EUR 3,952.57
    (CZK 100,000)

  • remaining 1 from 1
    Maecenas of ALSA "XXXL"

    • Become a Maecenas, whose name will be signed on the wall of future Alsa centre among other donors on a more special place.
    • You will be automatically invited to every ALSA Charity events and ALSA will thank you at the working diner with one of our celebrities.
    • As a bonus you will receive a signed photograph by Štěpán Hon on gallery paper 60x90 cm with personal dedication of who is on the photograph
    • Set of all badges, T-shirt and calendar 2017 limited edition included
    • Photo shooting of you and your family in rural atelier with Štěpán Hon.
    • A dinner with Daniela Peštová on top. After maybe she will take you to a concert of her husband Pavol Habera

    Reward delivery: in half a year after the Hithit project end

    EUR 9,881.42
    (CZK 250,000)

  • Sold out!!
    Vivaldianno backstage

    Exclusively just for you... Ticket for two to Vivaldianno 8. 6. 2016 in O2 Arena in Prague.

    Reward delivery: in a week after the Hithit project end

    EUR 118.58
    (CZK 3,000)

  • Sold out!!
    Drink a shot with David Kraus

    Ticket for two for show with David Kraus according to your choice (Archa/Semafor/Karlín) – after the show David will buy you a drink.

    Reward delivery: in half a year after the Hithit project end

    EUR 197.63
    (CZK 5,000)

  • Sold out!!
    Fotoseance v ateliéru Štěpána Hona

    Rodinné foto na šedém pozadí zalitém denním světlem proudícím přes prosklenou střechu. Zavítejte se svou rodinnou do venkovského ateliéru fotografa Štěpána Hona a nechte si pořídit sérii elegantních rodinných portrétů.

    Reward delivery: in half a year after the Hithit project end

    EUR 395.26
    (CZK 10,000)

  • Sold out!!
    Večeře s Danielou Peštovou

    Chcete si popovídat s topmodelkou světového formátu o velkém světě módní a reklamní fotografie? O cestě z Teplic na vrchol světa? Proberte to s Danielou u večeře. Třeba Vás po večeři pozve na koncert svého muže Pala Habery, kdo ví?

    Reward delivery: in half a year after the Hithit project end

    EUR 988.14
    (CZK 25,000)

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